Yes, it seems like I'm blogging only once a year. :D
The CAR-T cell therapy was successful. The infusion happened last Oct 29, and I was at the hospital twice for severe side effects, including facial palsy (paralysis in my facial muscles).
My hospital stays were very uncomfortable. The nurses kept waking me up for tests and the bed was uncomfortable. During my second stay, I tearfully begged to be let out so I could sleep in peace in my own bed. With much reluctance, they eventually agreed with several conditions. Even then, I had to go back twice a week for a check-up and I had to slowly wean out of the steroids and other medications, which would have been too dangerous to simply stop.
Then I had to change insurance at the end of the year, and that was another big hassle because my previous doctors were not in the network of the new insurance. Plus I had to pay the large deductible and the co-pays again, but that's typical of American health insurance.
Anyway, the cancer is in remission now, but I'm still dealing with other side effects, like a very weak immune system. So I still have not traveled outside my city and its twin city over the state border.
I go in every four weeks for the lab work and I see my new oncologist every three months. I've had some (minor?) incidents that I report a little after (half because I don't want to stay in the hospital again). And I eventually recover from those incidents.
I've joined an ACS Survivor's group in Second Life and I attend once in a while. I'm learning a lot of things that they don't tell you in the medical documentation. Including the fact that cancer and its treatment changes your body, so you don't tolerate heat or cold as well as you used to, for example.
I looked for work in the early months until I realized that I can't even stay awake for 8 hours a day because I needed two 2- or 3-hour naps each day. So I gave up on it temporarily and went back to volunteering meanwhile. At least I don't have deadlines so I could take my time doing the volunteer work.
So I've returned to the ISM. I'm redoing some of the landscaping and the website, and I just completed revamping the ISM Trivia Game, as well as creating some new t-shirt prizes. I'm continuing with the landscaping and the website, and I'll be adding more prizes and redoing the ISM Dating Guide. Then I'll go back to my Bel Emoi Books flipping journals, which I started last April. I'm wondering whether I should revisit Mer Betta and create mermaid tails again. But I also have my scifi novel to work on.
Lots to do!
Meanwhile, I'm still with Wolfgang. We've created an alt that he can use to go to public events with me, but most of those events are not European-friendly time-wise, so we've used that alt only once or twice.
So that's what I've been up to the past year. It feels easier now than during my chemo period. At the same time, I feel that I've still been a bit more productive. Not my usual productivity, but I'm addicted to that feeling of achievement.
I had my 60th RL birthday last October, which I didn't celebrate because of my health issues. I'll have my 20th SL rez day a year from now. I might celebrate that. :)
